Tuesday, November 25, 2008

Mary turned 3!!

So my little girl turned 3 last Friday. So we got all of her little friends and their moms together and went to McDonald's for lunch. Of course all day she had to wear her princess dress. She cracks me up. And I know, I know... she loves to show everyone what is in her mouth, just like her mom does.











While Mary was opening the presents, Ben thought it would be a great time to finish everyone's cupcakes and lunches. He really had me crackin' up.





I know ladies... I'm gonna get yelled at for putting pics of them up, but y'all look great!!!


And Lucy just loves Kena- she sat with her pretty much the whole time.



This is my little buddy Dagan. Isn't he just the cutest little man?? Him and Mary have a blast together.




And Lincoln had a really great time with his cupcake. I love red and pink cupcakes- they make the best pictures.
Thanks everyone who came to celebrate with us!! We loved it!!
Also- since we are on the subject of Mary- I thought maybe this would be a good time for an update.
The biggest thing that we are working on right now is getting her into a preschool through the County. She's already been accepted (which you usually get accepted into everything if you have a genetic disorder I've come to discover), but it was a CRAZY road to get there. Mary and I had to spend 2 1/2 hours with a school psychologist, then another appointment with a school nurse, then another 2 appointments with a speach therapist. They ask you a lot of questions (probably around 25 pages worth) like, "Can your kid stand on her tippy toes and take 2 steps?" Or "How does she hold her fork?" and lots of other things that you don't really think about. And you walk away feeling like a pretty crappy parent. Then they ask her to say a lot of things and do a lot of things. And all of you who have had a 2-3 year old know that they will only do things that they want to do. Anyway- they told me that she has quite a few "delays" that they don't think has anything to do with her Syndrome. I will find out more about that next week when I get to have a meeting with about 10 other people telling me what my daughter needs and what she is lacking. But anyway... she should be starting school shortly after that. A bus will come and pick her up at my house and bring her home. It is 4 days a week, so that will be weird!! Me and Lucy will get a little R&R together I hope!!
Also- we have found out last week that our insurance will not cover any of Mary's pre-existing stuff for a year at least. That has really hit me kinda hard, but we are getting through it. We are going to apply for Medicaid and hopefully that will help out. We have to get her echo done soon, and get the cyst in her brain checked out. Plus she is supposed to be on growth hormones by now. So it's a little stressful around here- but we'll get through it! We always do!
Mary is such a sweet little spitfire who seems to bring a sweet spirit with her everywhere she goes. People (adults and kids alike) seem to flock to her all the time. People I don't even know are always calling her by name, and she has a few boys (other than her brothers) that are constantly protecting her and fighting over her. We are so blessed that she is a part of her family- and I wouldn't trade these experiences for anything!! I can't believe she's 3 already! We love you Mary!

5 joe-cool comments:

Lyndee W. said...

Wow. It sounds like a crazy, stressful time at your house. We'll pray for you and your family that all works out financially and medically; and that Mary enjoys school.

Her party looked like a blast! I've never seen one of those little tables before; a perfect size for the littles. Happy Birthday Mary!

Momma Dil said...

Happy Birthday, Mary! 3 already? Really? Wow!

Good luck with all of the school and medical stuff. Reading that was like deja vu with what we went through with Neva this year. I can totally relate to the pages of questionnaires and sitting across the table from a team of "professionals" and feeling totally inadequate. Hang in there...I'll be thinking about you!

Momma Dil said...

Happy Birthday, Mary! 3 already? Really? Wow!

Good luck with all of the school and medical stuff. Reading that was like deja vu with what we went through with Neva this year. I can totally relate to the pages of questionnaires and sitting across the table from a team of "professionals" and feeling totally inadequate. Hang in there...I'll be thinking about you!

Momma Dil said...

Happy Birthday, Mary! 3 already? Really? Wow!

Good luck with all of the school and medical stuff. Reading that was like deja vu with what we went through with Neva this year. I can totally relate to the pages of questionnaires and sitting across the table from a team of "professionals" and feeling totally inadequate. Hang in there...I'll be thinking about you!

Erick and Janette said...

Happy Birthday to Mary!!! 3 is a big age!!
I had no idea what was going on with Mary. I'm so sorry you're stressed out. I can't think of anything I can do from here, but pray like crazy!! I will call and put your names in the Temple and pray for you guys every night. I hope Mary likes her school and everything will work in your favor.
LOVES!!!