Hey everyone! Mary had two appointments yesterday. The first one was her audio. When we went for her first ear check back in February, her left ear was not responding to anything except loud noises. When we went yesterday it was her right ear that wasn't responding. Her ear drum wasn't even moving. The fact that it has switched is actually encouraging, because that means it is selective, but it will still affect her speech and how she hears. They suggested that the number one priority for her is to get her into an Ear, Nose, and Throat specialist to get rid of all of her congestion, and go from there.
Yesterday afternoon we got to see the geneticist, and that was much more encouraging. Mary is in the 3 percentile on a normal growth chart (Turner's has a separate growth chart). But the point is that she is on the growth chart and so they don't think that she will need to start on growth hormones for a while. In fact, if she stays where she is at, she has a great chance of being 5 feet without growth hormones! But it's usually around age 2 when they stop growing- so we'll see!
The geneticist also measured everything from her nose to her eyes and her nose to her mouth and stuff like that. It was kind of cool, and nothing is unexpected there. Her eyes are normal and her ears have a little extra tissue but he thought it was cool because they still lay back. Usually they would stick out- so that's good!
The best part was that he told me that there is really only 3 specialist that I need to worry about right now- the cardiologist, the neurologist, and the ear nose and throat guy. That was really reassuring to me- it was nice to know which ones I could put on the back burner!!
Anyway- I've rattled on enough- thanks for visiting our post!!!
Alone at last
1 year ago
